MAJOR Chiari Malformation Advancement!!


Home The Daily Kitten Cat Chat Forum General Chat MAJOR Chiari Malformation Advancement!!

This topic contains 14 replies, has 13 voices, and was last updated by Avatar of KYKAT 12 23 KYKAT 12 23 3 years, 8 months ago.

Viewing 15 posts - 1 through 15 (of 15 total)
  • Author
    Posts
  • #43434
    Avatar of mollycat71
    mollycat71
    Participant

    This is so EXCITING, I could pop! For those of you who don’t know I have a rare disorder called Chiari malformation. My cerebellum “herniated” into my spinal column and I have had two major brain surgeries amongst other problems. There has been little advancement in the knowledge of this disease. I found this article tonight about a new surgery in which surgeons repair the “hindbrain herniation” in the uterus before the baby is born!” What a fantastic idea, fix the problem before the baby is born and help the baby from suffering horrible symptoms like I have had!

    http://www.cnn.com/2011/HEALTH/02/09/surgery.spina.bifada/index.html?iphonefb

    #640792
    Avatar of AZDEBRA 5/27 & crew
    AZDEBRA 5/27 & crew
    Participant

    :)

    #640793
    Avatar of ladysky61
    ladysky61
    Participant

    oh cool. I did not know this disorder was related to Spina bifada. From what I’ve read and seen on documentaries, babies who have this surgery seem to have much better quality of life and fewer complications. I hope it becomes standard practice in the future (covered by insurance, more surgeons, etc)

    #640794
    Avatar of paulajeanne
    paulajeanne
    Participant

    way cool!

    #640795
    Avatar of
    Anonymous

    Very, very encouraging, MC. Maybe someday Chiari Malformation will be one of those “long time ago” disorders. Also interesting at the end of the article was this:

    “The exact cause of spina bifida is unknown, but experts agree women of childbearing age can reduce the risk of their child getting this disease by getting enough folic acid (at least 400 micrograms) from leafy green vegetables, fruits, beans or supplements and vitamin B12 (2.8 micrograms), found in meat and eggs.”

    #640796
    Avatar of mollycat71
    mollycat71
    Participant

    Yes its considered a “high level” type of spina bifida. Or a “complete” spina bifida. It develops as the neural tube is developing. In SB the tube generally doesn’t close entirely. In CM it closes but not correctly. I think they are onto something!!!

    #640797
    Avatar of duchessmom
    DuchessMom
    Participant

    Oh I’m so happy for you, to hear about this. I really hope they can start doing this it would be such an advancment and would be great for other babies not to deal with this. I’m sorry that you do MC, you’re such a trooper and great person. :)

    #640798
    Avatar of nawlins-catmom
    nawlins catmom
    Participant

    MC, What fantastic news for the future!

    #640799
    Avatar of cricketsmama
    cricketsmama
    Participant

    That is wonderful news! I am so happy for the babies who are diagnosed with CM and can be helped in utero but sorry MC that you have to suffer with it.

    #640800

    That IS wonderful news, MC! I’m so happy to see this advancement. :-)

    #640801

    Great news, MC. I hope many more discoveries are made to improve the lives of those who have CM. You are one of my heroes!

    #640802
    Avatar of mollycat71
    mollycat71
    Participant

    bump

    #640803
    Avatar of Jeankit
    Jeankit
    Participant

    Wow…amazing news with encouraging results.

    #640804
    Avatar of katthays
    katthays
    Participant

    That is such great news, MC!!!!

    #640805
    Avatar of KYKAT 12 23
    KYKAT 12 23
    Participant

    Awesome! The more doctor’s can correct before birth the healthier those affected will be!

Viewing 15 posts - 1 through 15 (of 15 total)

You must be logged in to reply to this topic.